Sam, a former 2 time Olympic mogul skier has auctioned a day private coaching in the mountains this winter in support of Action for A-T.
JUMPSEC is proud to back this initiative by providing Sam with the time off and paying for the travel and expenses.
A-T is short for Ataxia-Telangiectasia which is a rare, neurodegenerative and progressive condition that starts in early childhood causing severe disability and premature death. There is currently no cure for it and nothing that can halt its progression. Babies are born ‘normal’ and then slowly, from around the age of 5, start to lose their independence. A wheelchair is needed usually by the age of ten, if not before, and in many cases, a feeding tube by the age of 12.
The immune systems of children who suffer from A-T are usually compromised and so they often do not live beyond their teens, usually dying of either cancer or a severe respiratory infection. A-T has been described as having the worst symptoms of four diseases: cerebral palsy, muscular dystrophy, cystic fibrosis and cancer. Studies show that children who are affected by this debilitating disease do not lose any of their mental capacity and so over time they effectively become severely restricted by their deteriorating body.
More information on action for A-T can be found at the action for A-T websites www.actionforat.org, the website also accepts donations.
Well done Sam!